Austin | Dallas | Houston
Party Watch

Rare disease tackled with some help from Saint Arnold beer: Children’s Memorial Hermann, families step up

Enlarge
Slideshow
Mike and Emily Sperandio, from left, and Tahra and Craig Peterson at the PALS event June 2014
Mike and Emily Sperandio, from left, and Tahra and Craig Peterson. Photo courtesy of © Sara Catherine Photography
Janae Tsai, left, and Kristy Bradshaw at the PALS event June 2014
Janae Tsai, left, and Kristy Bradshaw. Photo courtesy of © Sara Catherine Photography
Neil Martin, from left, Jen Porter and Brad Porter at the PALS event June 2014
Neil Martin, from left, with Jen and Brad Porter. Photo courtesy of © Sara Catherine Photography
Keith and Bridgette Bilski, from left, Joelle Derrick and Adonia Cokinos at the PALS event June 2014
Keith and Bridgette Bilski, from left, Joelle Derrick and Adonia Cokinos. Photo courtesy of © Sara Catherine Photography
Josh Bowlin, from left, Mike Sperandio and Dabney Graney at the PALS event June 2014
Josh Bowlin, from left, Mike Sperandio and Dabney Graney. Photo courtesy of © Sara Catherine Photography
Jeff Peden, from left, S.J. Swanson, Lauren Granello, Buddy McClung and Will Swanson at the PALS event June 2014
Jeff Peden, from left, S.J. Swanson, Lauren Granello, Buddy McClung and Will Swanson. Photo courtesy of © Sara Catherine Photography
Dr. Mary Kay Koenig, from left, Lori Martin and Elizabeth Baker at the PALS event June 2014
Dr. Mary Kay Koenig, from left, Lori Martin and Elizabeth Baker. Photo courtesy of © Sara Catherine Photography
Mike and Emily Sperandio, from left, and Tahra and Craig Peterson at the PALS event June 2014
Janae Tsai, left, and Kristy Bradshaw at the PALS event June 2014
Neil Martin, from left, Jen Porter and Brad Porter at the PALS event June 2014
Keith and Bridgette Bilski, from left, Joelle Derrick and Adonia Cokinos at the PALS event June 2014
Josh Bowlin, from left, Mike Sperandio and Dabney Graney at the PALS event June 2014
Jeff Peden, from left, S.J. Swanson, Lauren Granello, Buddy McClung and Will Swanson at the PALS event June 2014
Dr. Mary Kay Koenig, from left, Lori Martin and Elizabeth Baker at the PALS event June 2014

What: People Against Leigh Syndrome (PALS) fundraiser.

Where: Saint Arnold Brewing Company 

The 411: Friends, families and doctors of those suffering from Leigh syndrome gathered in support of research into the neurometabolic disorder. The $95,000 raised goes to the UT Mitochondrial Center of Excellence at Children’s Memorial Hermann Hospital. Guests supped on barbecue from Goode Company, washed down with Saint Arnold brewskies, and bid on silent auction items.

Elizabeth Baker shared the story of her son who was diagnosed with Leigh syndrome as a toddler and is currently under the care of the clinic. Clinic director Dr. Mary Kay Koenig was among the 175 guests.

Who: Jennifer and Steve Dolman, Emily and Mike Sperandio, Marissa and Geoffrey Cormier, Bridgette and Keith Bilski, Claire Cormier Thielke and Rick Thielke, Janae and Ken Tsai and Tahra and Craig Peterson.

Newsletters for exploring your city

Daily Digest

Houston news, views + events

The Dining Report

News you can eat

Insider Offers

Curated experiences at exclusive prices

Promo Alerts

Special offers + exclusive deals

We will not share or sell your email address